Unfortunately, thousands of parents receive a diagnosis of CP for their children each year. The good news is that there are countless support groups and organizations which offer comfort and hope.
Support groups have been found to be very beneficial to the families with CP children. Local parenting groups and online forums catering to CP parents foster a sense of community, love and support.
One of the best parts about these support groups is learning from the tips and tricks offered by parents who have already raised a child with CP. Having these conversations, whether in person or online, with people who were already in those shoes will better prepare the newcomers for their family’s future.
Here is a list of some great organizations and support groups that are dedicated to helping parents and caregivers not only cope, but thrive with their child:
United Cerebral Palsy (UCP) educates, advocates and provides support services to ensure a life without limits for children with CP.
The Cerebral Palsy Support Network (CPSN) is a non-profit organization providing information and support services to people living with cerebral palsy and their families.
The Cerebral Palsy International Research Foundation (CPIRF) is dedicated to funding research and educational activities directly relevant to discovering the cause, cure and development of evidence-based care for those with cerebral palsy and related developmental disabilities.
There are also numerous blogs written by both parents and CP children themselves. Although many of the blogs contain invaluable information, treat them with caution. The information may not be evidence-based and is unlikely to be relevant to all people.
Additionally, Facebook has several heavily populated support groups - ranging from Q & As to helpful tips.
So, what are you waiting for – join now!
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